I met with Dr. Donlon (neurologist) this week. She said based on the fact that my brain lesion is growing and changing, we need to stay open to the idea of a biopsy (my brain lesion is in a very dangerous spot for a biopsy, or we would have already done it). She agrees that it should be a last resort, but reminded us that it might come down to that, and suggested we keep an open mind.
She said she said that while the autoimmune encephalitis is a valid theory, and we should absolutely test that theory first (try the plasmapheresis and see if it shrinks my brain lesions) it is still very possible that this is a rare tumor. She is sending me to see a neuro-oncologist at Barrow Neurology for an opinion, just to cover our bases and stay ahead of this. This will be my first oncology consultation, so it's a little unnerving. But I agree with being proactive. We will be scheduling that appointment asap.
She said she said that while the autoimmune encephalitis is a valid theory, and we should absolutely test that theory first (try the plasmapheresis and see if it shrinks my brain lesions) it is still very possible that this is a rare tumor. She is sending me to see a neuro-oncologist at Barrow Neurology for an opinion, just to cover our bases and stay ahead of this. This will be my first oncology consultation, so it's a little unnerving. But I agree with being proactive. We will be scheduling that appointment asap.
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